I look at our life today and I am happy, most days. Life is not like a movie, its not always pretty or perfect but its life. We go shopping, to therapy, to the zoo, swim lessons for our daughter, we own a home, we have love for each other and our family. I feel somewhat "normal" which is something I never thought I would say. Its a new different normal but still normal. We have a group of people that have become like family, finding our church was really something we needed. It gives us something else to focus on besides therapies and doctor visits. They make us feel like we belong there, which in the 10 years of his injury has been very difficult to find. They don't stare at Yuriy or look at us with pity, they treat us like the normal family. I love that Adelina will grow up learning about our faith and also making friends along the way. I didn't realize we were missing that part of our life but we were.
Brain injury is like a family member that no one likes. But its permanent so we just get used to having it around. I feel like i have slowed down from when he was first injured. I would spend hours and hours on the computer looking for a cure, treatment, anything to get my husband back.
He has tried so many things, some of which he loved and others he hated, but he still did them. But right now I know he is doing the most he can and he is happy even with his disability, which has given me a new perspective. And to be honest I am tired, I am a mommy to a very active toddler and it really limits your ability to function well :)
We are enjoying our lives instead of always searching, there has to be a balance. It took me years to find it though and I still have guilt that he may get better through something that I haven't found yet. I wish and pray for him to wake up one day and talk or walk or be able to see clearly but I know that its not up to me.
I wish Adelina could have met her daddy before and know how fun he was, I can see him throwing her in the air, giving piggy back rides, running after her, teaching her how to skateboard. But she does know her daddy, she knows him better that anyone. Her daddy is strong, brave and never gives up, he loves her more than life itself. Those things are the important ones. She knows her mommy would do anything to help her and show her the best life possible. She is growing up to be an extraordinary little human.
It has been some time since I wrote a blog post, but I thought it may be time to start again and see how it goes.
<3 aimee
3 comments:
So many of the Things you talk about feeling I feel also. I miss talking with Shane. I can still remember the date of the last time we had a actual conversation. I to feel guilty at times. Have I done enough. Is there something new out there that I do not know about, Do I challenge him enough so that he keeps growing in his recovery. I wonder when is enough enough. But then he does something like he did a few days ago. Out of no where he starts singing. Not all the words are clear but he is trying and I can see at that moment he is happy. I want him to enjoy living life not just be alive. Your blog reminds me I am not the only one that struggles with these thoughts and feelings. Thank You We are now 9 years out from when he was wounded. Time waits for no man.
God bless both of you. I can barely fathom what you experience every day. But I know you have faith that God will see you through each day, minute, hour, etc. You amaze me with your courage and steadfast determination. While I know you must experience doubt and sadness from time to time, I see strength and love that surpasses the understanding of most. I pray for God's continued blessings on all 3 of you and your family too.
Peace,
Chaplain Rob
God bless both of you. I can barely fathom what you experience every day. But I know you have faith that God will see you through each day, minute, hour, etc. You amaze me with your courage and steadfast determination. While I know you must experience doubt and sadness from time to time, I see strength and love that surpasses the understanding of most. I pray for God's continued blessings on all 3 of you and your family too.
Peace,
Chaplain Rob
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